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  • It does not mean, living carelessly
    With your disease.

    It does not mean forgetting
    Constantly complaining
    About the related daily procedures.

    It means accepting
    This beast that we are fortunate to have encountered
    Through no fault of our own.

    Some were born into the path less travelled –
    Others happening to stumble into it
    My friends, we all know there is only one way out
    It all comes down to
    How well of a walk you want to have.

    With that single decision,
    You will transform, not only your body
    But your mind and soul will also be lifted out from
    The shallow lives of those who can even think about
    Regarding you from a higher position.

    For to truly live with this chronic disease,
    Is to live both the length and breadth of this life
    We all fought our own unique battles to keep.
    We can live free.

    Free from the glaring condescension
    The scorn, the muffled laughs,
    The fake understanding,
    The indifference,
    The society.

    Free, for our children
    Our children’s children. For
    A world where no child in any country
    Will have to think about the massive financial burden
    Hanging off their parents’ shoulders
    Due to the expensiveness of such a disease.

    I know we all dream of the golden day
    The day where the sunshine is just right
    At our doorsteps, and the air is fresh from the
    Glitter of a thousand stars, and we know
    There is a permanent cure.

    I know that it may not come,
    Maybe not in our lifetime.
    Let us, then, believe that we are also living
    So that future children won’t have to live with
    The same disease.

    With our univocal strength,
    We would also be letting them live free.
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