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  • Photo: David and Marc Egan at the 2011 Special Olympics World Summer Games in Athens, Greece.
    Following page: Michelle Kwan and David at the 2011 Special Olympics World Summer Games in Athens, Greece.

    David Egan is a self-advocate with Down syndrome who is active with Special Olympics, Down Syndrome Affiliates in Action, the National Down Syndrome Society, and the Down Syndrome Association of Northern Virginia, where he serves on the Board. David has worked at the strategy and technology consulting firm Booz Allen Hamilton since 1996.

    In April of 2013, I interviewed David and his brother Marc about their experiences as siblings. In this story, they remember what happened when David stepped into the spotlight at the 2011 Special Olympics World Summer Games in Athens, Greece. I recorded Marc and David in the Egan family home in Vienna, Virginia, in April 2013. (Marc's is the first voice you'll hear. You'll also hear some kitchen sounds in the background.) You can listen to another favorite story from their trip to Athens here.)

    Listen to David’s stories here:

    Listen to David’s stories told in collaboration with his younger brother, Marc, here:

    Learn more about the project that David and I are collaborating on, Nothing About Us Without Us: The Project, and listen to the stories behind our story: The Magic Happens in the Field, and Beginnings.

    Visit David’s personal website here.

    This is an edited excerpt from an interview I conducted for my thesis in the Oral History Master of Arts program at Columbia University, in which David and Marc Egan shared with me some of their memories and reflections on siblings and disabilities. The full interview was conducted on April 20, 2012, in Vienna, Virginia, and will be submitted to the Regional Oral History Office at the University of California, Berkeley, for inclusion in the Disability Rights and Independent Living Movement archive. I will also submit a methodological paper providing context for and analysis of my process conducting and sharing life history interviews with self-advocates with Down syndrome to the Academic Commons at Columbia University. If you would like to know more about my process, please contact me here. With gratitude to the National Down Syndrome Society for their early support for this project.
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