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  • I just have to share this.

    Sometimes we feel we can't make a difference when we are just one voice. The problem with that is, if that one voice is silent and others feel the same, there can be a deafening silence.

    This story is about voices speaking up and achieving a small but significant victory.

    My teen son has ADHD (Attention Deficit Hyperactivity Disorder). After trying different meds to help him we found Concerta was the one that worked for him. Initially insurance paid for it but then a generic came into play made by the pharmaceutical Janssen. So he took that as the brand then cost too much. As time went on, two other Generics came about and the pharmacy dropped Janssen and the one we were given by our pharmacy was made by Malinkrodt. Of course its all about money, not what benefits the patient.

    What a disaster! It was not a true generic but a pretender. Our son started failing school again, was moody, and not himself. So, I looked into it and found many others with the same experience and this generic doesn't use the same slow release of the medicine the way the brand Concerta does. It was this very specially designed slow release mechanism that makes the medication work so well. So, I, along with a lot of other people filed FDA complaints. We then had to put our son back on the brand and pay $100 month for the privledge. I felt bad though, knowing others with less income, probably couldn't and were stuck with the inferior medication.

    Today, I learned our voice has been heard! The FDA investigated, based on the many complaints they got, and have "downgraded" two inferior generics in recognizing they are not true generics of Concerta. This means our pharmacy can't offer these inferior products as a generic. They can still be prescribed but not accepted as an equivalent if Concerta is prescribed. I will be giving this information to our pharmacy and our son's doctor. Also, this means a lot of folks who took the inferior generics by default and thereby suffered by them, can no longer be forced to do this. The Janssen generic is still an acceptable equivalent.

    This all may not make a lot of sense if you or your child doesn't have ADHD, or if you do, but don't take ADHD meds. But there are many people who have been affected by this.

    It has been a big lesson for me to speak up and take a stand. And ultimately this lesson can apply to a lot of areas of life.

    I feel like the little mouse who roared and right now I'm licking my chops and enjoying my morsel of victory over the drug companies!!
    ___________________
    Copyright free photo of lion
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