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  • David Egan is a self-advocate with Down syndrome who serves on the Board of Directors of the Down Syndrome Association of Northern Virginia, and is active with Special Olympics, Down Syndrome Affiliates in Action, and the National Down Syndrome Society. David has worked at the strategy and technology consulting firm Booz Allen Hamilton for the past 17 years.

    In April of 2013, I interviewed David and his brother Marc about their experiences as siblings. In this story, they share a favorite story from their trip to the 2011 Special Olympics World Summer Games in Athens, Greece. I recorded Marc and David in the Egan family home in Vienna, Virginia, in April 2013. (You'll hear my voice first, followed by Marc. You'll also hear some kitchen sounds in the background. You can listen to another favorite story from their trip to Athens here.)


    You can listen to more of David and Marc's stories here:

    Something About Me
    Of Chores and Expectationss
    Beginnings
    Good Help


    David and I are working to document our collaboration and tell the story behind the story, as well. Check out these two for starters, with more to come:

    The Magic Happens in the Field
    Beginnings

    This is an edited excerpt from an interview I conducted for my thesis in the Oral History Master of Arts program at Columbia University, in which David and Marc Egan shared some of their memories and reflections on siblings and disability. The full interview was conducted on April 20, 2012, in Vienna, Virginia, and will be submitted to the Regional Oral History Office at the University of California, Berkeley, for inclusion in the Disability Rights and Independent Living Movement archive. I will also submit a methodological paper providing context for and analysis of my process conducting and sharing life history interviews with self-advocates with Down syndrome to the Academic Commons at Columbia University. If you would like to know more about my process, please contact me here. With gratitude to the National Down Syndrome Society for their early support for this project.
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